Article Document Academic Article Information Content Entity Journal Article Continuant Continuant Entity Entity Generically Dependent Continuant 2025-05-07T23:49:42 RDF description of Developing a data infrastructure for a learning health system: the PORTAL network - http://repository.healthpartners.com/individual/document-rn6909 21 Informatics Developing a data infrastructure for a learning health system: the PORTAL network Data Systems 2022-02-21T22:48:57.408-06:00 public 25646 Research Support 4 document-rn6909 10.1136/amiajnl-2014-002746 Patient-Centered Care <p>The Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) network engages four healthcare delivery systems (Kaiser Permanente, Group Health Cooperative, ΏͺΤΖΜεΣύ, and Denver Health) and their affiliated research centers to create a new national network infrastructure that builds on existing relationships among these institutions. PORTAL is enhancing its current capabilities by expanding the scope of the common data model, paying particular attention to incorporating patient-reported data more systematically, implementing new multi-site data governance procedures, and integrating the PCORnet PopMedNet platform across our research centers. PORTAL is partnering with clinical research and patient experts to create cohorts of patients with a common diagnosis (colorectal cancer), a rare diagnosis (adolescents and adults with severe congenital heart disease), and adults who are overweight or obese, including those with pre-diabetes or diabetes, to conduct large-scale observational comparative effectiveness research and pragmatic clinical trials across diverse clinical care settings.<p> 15533 Learning Health System Collaboration Journal of the American Medical Informatics Association